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Business Day article - 15 April 2011 |
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Haemochromatosis can be a silent killer - beware! |
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WELCOME TO THE WEBSITE THAT EXPLAINS ONE OF THE MOST COMMON AND LEAST UNDERSTOOD GENETIC CONDITIONS!
Haemochromatosis is a genetic condition which can cause the body to accumulate excess iron. Iron is vital to the efficient functioning of the body but excess iron can damage vital organs (eg the liver, the heart and kidneys).
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Haemochromatosis is easily detected and easily treated. The problem is that the condition is, through ignorance, often not detected or is detected too late when organ damage is already in evidence.
This website has been provided to enable those who have an interest in Haemochromatosis (HH)(also spelt 'hemochromatosis'), ESPECIALLY IN SOUTH AFRICA to find information and support about this relatively unknown, often unrecognised and potentially dangerous condition. Those suffering from HH as well as their families, doctors and nurses will find useful information on this site. All are encouraged to become more actively involved in the objectives of the Society in support of the development of wider awareness of this genetic disorder.
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| Paul Geoffrey Bird |
Frederick (Tom) Warder |
This website is dedicated to the memory of Paul Geoffrey Bird (1974-2000), who died from Juvenile Haemochromatosis in Port Elizabeth aged 25; Frederick (Tom) Warder, who died from Haemochromatosis, in South Africa in July 1992 and of John Ferrans who passed away on 3 March 2009 as a result of undiagnosed haemochromatosis. |
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Some history |
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The South African Haemochromatosis Society was one of the first such Societies in the world. Largely through the pioneering work of Marie Warder, the South African Society was founded in Kimberley in 1987. The first official meeting took place at Malanshof, Gauteng and the picture below is of those who attended this meeting.
Back, left to right: Dr. Hitzeroth (Director-General of Genetic Services), Bill Robinson (National Treasurer), John Scott (National Chairman), Bobby Armour (1st registered member)
Front: Marie Warder (Founder), Ray Davis (a tireless, invaluable volunteer), Simon Overbeek (National Secretary). |
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